Positions are now open for volunteers to join our Board of Directors. On our wish list includes a fun fundraiser, press to bring attention to World Lymphedema Day in March and plans for 2020’s gatherings. Let us know what you can do. We need you!


A person can be born with Lymphedema, abnormal lymph drainage, or can have fluid build up in parts of the body due to surgery, trauma, radiation, or medicines. The cause of primary (genetic) lymphedema is not known. Secondary lymphedema can occur after damage to a person’s body. There is an estimated 202,248 (est 2017) population with Lymphedema and Lipedema combined in New Mexico.


Helping people, families and communities thrive with Lymphatic conditions, build a resources, raise awareness, offer screening and support research for a cure.



In 2014 Deana Benjamin, a physical therapist with CSV Sports Medicine, diagnosed one of her patients with Lymphedema and Lipedema. This patient was Stephanie West, who together with Deana Benjamin launched a campaign to build community and resources for people suffering in New Mexico. The website launched in January 2018 with overwhelming response. Today, the organization is officially a 501(c) 3 Charity.

I am not ready to accept Lymphedema & Lipedema as non-curable. My condition is not my fault. Years of suffering with little to zero results is devastating. My mission is to help others get information and support while advocating for change and a cure.

Stephanie West

Owner, Go West Design

Any Age, Gender, Race

Can be born with abnormalities in the lymphatic system or acquire lymphedema.  Surgery, trauma, radiation or infection can compromise a lymphatic system.

10 Million

More people suffer from Lymphedema in the USA than MS, ALS, AIDS & Parkinson’s COMBINED

Breast Cancer Survivors

Around 42% of breast cancer survivors will develop Lymphedema

The Everything Lymphedema Conference on October 12th 2019

150 attendees, 19 vendors, 7 expert speakers, Q&A’s, 5 fashion models, healthy lunches and 15 raffle giveaways.

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